Kupriyanov Vladimir: I want to help fish children
Event: XXXVII UFIMSKY SKI MARATHON - 2022
My name is Vladimir Kupriyanov! I am taking part in the XXXVII Ufa ski marathon, and on March 8 I am skiing in support of the children under the care of the Breaking Barriers Center - children with a rare genetic disease, ichthyosis. Such children are called "fish". In this disease, the barrier function of the skin is disturbed. The child's skin is very dry and flaky. Any movement causes pain. Such skin needs daily cleansing, moisturizing with the help of special products. My goal is to improve the quality of life of the wards of the Breaking Barriers Center. The amount of the fee is 10 thousand rubles to purchase specialized and moisturizing products. I hope you support me and together we can help fish children! View more >>
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